7-27-19 update

Well, I was off and on sick recently it seems when I have a great day and work gardening a bit or do housework by the end of the day I am wiped out but it is the next day that bothers me. 

I am usually sick like yesterday I had diarrhea tired and out of sorts, it seems I can do things every other day and have to except the other days I will be sick or not feeling well in some way. remember I am on watch and wait with a cancer flare-up which means once it gets bad enough we use treatment to get it into remission. after the biopsi I will start treatment we are finding out if it will be aggressive or not meaning 2 different therapies.

 the biopsy will tell us then I will get a tube shunt or whatever you call it in my chest near my neck for the treatments. 

I have the biopsy in a couple days nervous about it but at least I know what to expect just a different spot this time not my armpit but my lower back I will let you all know how it goes.

I was feeling some depression I wrote about having anxiety and depression to my FL group on facebook they recommended writing good things down think only the positive to get through so I started making these a fun way  to put write my good thoughts down 

I made some awareness items at Zazzle here is one we did for Jonathan people can change the white letters to what they like  the link is here zazzle awareness products 

My husband Jonathan in his hat 

till next time many hugs and thanks 

PET scan results

Pet scan did show some lit up spots mostly in my neck, my armpit had one, and upper chest near neck area and some in my stomach area just above the pelvis. He is going to talk to biopsy specialist to see if any of the clumps/ lymph nodes are big enough the biggest is 3/4 of an inch the rest under a centimeter and a half and smaller he wants a larger enough sample making sure cancer hasn't changed to aggressive. in the meantime for my follicular lymphoma He wants to start treatment because of the fever and fatigue and lack of appetite at times so I will get a shunt put in my chest and start a chemo mixture that actually has few side effects the worse part is sitting through it. for 4 hours each time. so I hear anyway. if he can he will have shunt and biopsy at the same time I think. 

I will admit it all hitting me in the evening crying but not about cancer as much as my strength deteriorating and worrying about Jonathan. I have always been that way things hit me all at once then all is ok again. 

OK good things well we had a bunch of Amazon gift cards from survey sites so used them at amazon prime days for fun Christmas in July yup really Christmas in July we are going to watch Christmas movies and all hehehehe love it,  we ordered a video doorbell and some hats for me and one for Jonathan as well a backpack for laptop and such for Jonathan's work and my long days at the hospital or miny trips a shared deal lol . Jonathan got me a sloth throw blanket and got him a new dash cam for the car.  silicone pot grabber for Jonathan he keeps burning his hands not thinking and his mitt doesn't fit now because of his arthritis. and some other small things it was fun finding that extra money in amazon gift cards we had,

if you want to know the  survey sites we use  to get gift cards they are

 Swag bucks 
inbox dollars 
mobile performance meter 

and for free apps music or movie rentals from play store we use google rewards app.

Merry Christmas in July I celebrate Jesus every day love one another.

A update

so was sick most of yesterday had a fever 101.8  my armpit lymph nodes are swollen again I have started keeping notes for the doctor I am still new to all this I assume this part is not to bad even though I feel lousy if my armpit goes down fast it could mean I do not need any treatment. last night temp went down today it is 100.1 but I am feeling a lot better.

I don't think I told anyone the exact B-cell Lymphoma I have  it is follicular lymphoma

this is a good link about it  Follicular Lymphoma what is it 

hugs all more later 

Curing Cancer and Diseases

Why did God take my loved one?
Why did God give my child cancer and take him from me?
Why is god making my loved one suffer from this disease?
God gave humans choices, free will. I will write more about this later in this post.

I had a nightmare that I was taking beautiful photos of dolphins, and an orca (killer whale) and all of a sudden whalers attacked and pulled the bloody body of the whale out of the water. I had to write my feelings about killing God's creatures for no reason but to make a buck, especially those that are dying off perhaps never to be seen again.

Elephants, did you know we have big studies of and discoveries on why elephants do not die of cancer, zebras are also being studied, and they are being studied alive not dead. We need them alive.

Bowhead whales, which can live over 200 years with almost no evidence of age-related disease, could help humans to live longer, healthier lives, suggests a new study.

Actually, we have many animals and plant life which could hold answers to cures to not only cancer, but other diseases as well.

We are the caretakers of the earth. God gave us this huge responsibility yet we ignore it.
Jesus taught us to love one another. Jesus taught us to care for each other, the sick, the poor, the hungry, the stranger (including immigrants, and we all are from imagination unless we are Native American.)  ~ Mathew 25

Sadly many blame God, I have no understanding of why. I am Christian and I know we humans are given free will from God, what has this free will done?

1) Destroy our planet with chemicals.
2) Killing off animals and plants that may hold answers to cancer and diseases.
3) Not supporting schools. Poor kids are suffering empty stomachs, unable to study, or not having the attention from teachers, not having the equipment they need, unreliable heating systems. Giving every child a chance to succeed, and go to college, is important. The child that was too poor may have been the scientist with answers and the discovery of cures. 
4) Mentally ill in the streets, including soldiers of past wars with PTSD. We can take care of our mentally ill, getting them the help they need and reduce the stigma. We can raise kids not to join gangs, to have respect, and if they do not then send them to boot camps and other programs to teach them. These programs should be free and watched over so no abuse occurs. All this can reduce suicides, mass shootings, and other shootings. It can reduce drug use and more.
then we have the basics eating right not being gluttons not being greedy those with money should help our poor not smoking or drinking and so on we have more risk of disease choice again is ours, not gods fault al we can ask is forgiveness and his help. we have no right to blame god when he indeed gave us the resources, knowledge, children in school, doctors, ways to make medicine and all we need.


We as Christians, and just as human beings, make these decisions and choices.
A story I will always remember told to me was of the drowning man.

A flood hit and a man didn't leave his home even after many warnings, he said I will pray, I believe God will save me. It got worse and he was on his roof as a boat came by to help him, he said to them  "I am Christian and I believe God will save me". Then a helicopter came to help him and he said the same again "God will save me". Well, the man drowns as the waters got rougher and higher. He approaches Heaven's Gates and asks, "Why didn't you save me God?" God said, "I sent you warnings on the TV, I sent you a boat, and then I sent you a helicopter."

We are given all we need, we just need to do what is right. It is our choice to receive the gifts God gives us, not turn them away or destroy them like the elephants, whales, plants, and environment our future possible doctors who need to discover cures.

I pray a lot, I pray for peace, I pray all the hate will stop in our nation, I pray for cures for everyone and healing for everyone. 

PETScan

7-4  no carbs all day today miserable trying to find something appetizing to eat I have PET scan tomorrow and IV fluids is sugar based so funny though Jonathan went out and got me some shrimp and after he sat down with some sushi he looked over and I laffed and handed him last 2 he was like what? you ate them all I had forgotten to save him some but my tummy is finally satisfied all I had was some cauliflower mac and cheese at noon. we both laffed so hard it was great my mood is better and enjoying Boston pops fireworks on tv tonight. no more grumpy Lisa lol, have a great independence day evening stay safe hugs all.

7-5  Pet scan well first everyone was so nice second it was done on a truck I had never been on a truck like that before when you first go up the lift you see all the computers to the right is lab where you get sugar tested and your iv of radioactive stuff not enough to turn you glow in the dark, green or anything they said lol then waited back in the building waiting room for 45 minutes then back for the scan. it was longer than the cat scan but wasn't bad. 

boy was I tired when I got home. 

Update 7/1/19

 I lost another 10 pounds when visited doc last week making it now 40 pounds in all, it is because of  loss of appetite  it could be the lymphoma or it could be nerves and stress or depression or all, I am doing better - I changed my diet and exercise I make my self eat and eating more cooked green veggies, yogurt, my ninja shakes, soups, pasta dishes all that are more appetizing to me than heavy meals sometimes. when I can't eat I have a protein shake but I also have good regular meals in the mix. funny eggs are supposed to be good but I do not like eggs much just scrambles or in a quiche or omelet well we found I really like and we are making egg burritos like Mc Donalds has and I love them so a great meal for me. we are going to make some and freeze them for when my apatite is down because these seem to go down fine when I am feeling blah.

I am walking on my treadmill and riding my exercise bike now which has helped me so much I am getting more energy and a bit better apatite. today instead of the bike or treadmill I will trim the back lawn

me today, yup I am singing lol mom always said she knew I was happy when she heard me sing

In case you did not know
 So I have B cell lymphoma  as I said the doctor said it is one of the more manageable but it doesn't really go away it goes in remission which is close to going away, I have a pet scan coming up to see where it might be attacking me right now could be stomach or intestines could be bones  just do not know yet the pet scan should tell us. this blog will have updates but lost more like photos memories stories and fun hugs everyone thanks for stopping by


what a beautiful morning can't wait to get outside.