Christmas is coming fast I love the season because people are kinder, hope and peace all around.
The vaccine oh almost forget today we finally get the vaccine in the USA for covid 19. It will be a while before everyone gets the Vaccine. but we now have hope.
I decorated the house with lights and a tree I think of all the Christmas times before. mom loved it so she decorated the whole house we sang Christmas songs to her classic holiday records blasting on the stereo. I remember cooking and mom covered in flour she always said the messier the better it tastes, miss mom a lot now that I have had cancer I cried during chemo at times in the night wanting her to hold me Like when I little and not feeling well. and then like I said the holiday memories of her are all around me. The decorating the music and the smells of her recipes that I now cook.
this is not an advert but I remember the cardinals we would get so excited when we would see one in our backyard mom loved them as I do today. I found a saying or meme one day it said cardinals are messengers from heaven from loved ones lost I have heard many versions of this saying and I believe that when I see one it is moms watching over me I saw many when I was going through chemo they made me feel better, well anyway I made an image this year of cardinals for my shop in her memory it did so well I thank everyone so much. here it is. Have a wonderful Christmas everyone.
so this week I am going for more tests because in my cat scan they saw something on my ovaries that has moved pretty upset because i suffer anxiety and i do not think any women likes her vajj out for all to see especially older women so upset for many reasons but like aways I am a fighter and will work through this
UPDATE Sept4 --Well went to docs CAT scan was good I have one node still in my lower abdomen it was the aggressive one that was over 2and half CM it is still shrinking smaller than 1cm so good. And rest all still gone and blood work was Good, Next scan in 6 mo, I have a large cyst on my ovary they will probably remove after I meet with another doc. And probably will be soon waiting on a call, asked about port removal he said wants to wait on the ovarian cyst and see what happens with that. So port flush tomorrow. Hugs all , thankful for you all.
Well, everyone, I have been crying all morning because here we go again. It started with a weird call this morning from gynecology at kent hospital setting an appointment. Huh? Why? Well, something was seen on your ultrasound. Uhhh no, we didn't have an ultrasound but did have a cat scan. Ok, let us call Dr. Joseph's office and find out what is up. So we call oncology (Dr. Joseph) office. They apologize, apparently, the referral got ahead of the call to us. They saw something in CT scan, a mass has moved. What?? so I have a mass on my ovaries that was seen before but it has changed position since then. So they are scheduling all kinds of tests for me starting with vaginal ultrasound. Yuck! And a gynecology exam and pap smear to start, next could be a biopsy and or removal of it or ovaries or more treatments. I am so upset I was really hoping to be one of those many who go years with no issue in remission. And these exams and location upset me so much with some issues I have with anxiety, depression, and PTSD, on top of worries about the stage of it if it is cancerous, and death, crying.
Staying at home us not bad but the fear of getting the disease and all that comes with gets long and tiring.
The good together time with Jonathan first puzzle ever done together,awww is right haha. I guess I do not write as much these days, excitement is limited it seems. Politics are huge and black lives do matter.
Virus is still out there stacking humans. And people are still argung about having to put masks on when out. We are ok worried but ok. Love you all.
This is first puzzle we did love it and second is pic of next one we are working on.
It has been 6 months since my last chemo The day after thanksgiving a lot to be thankful for and a wonderful Christmas gift finding out I was in remission, I thank all my friends and family and all the doctors and nurses I love you all. it has been a long 6 months in some ways we have the virus going around this year and isolated at home and I am extra cautious, but I have been doing better a bit grumpy and depressed at times but otherwise pretty good, I am grateful for so much, but mostly for my life mine and everyone around me strength love and hope. God bless all those survivors out there and families and hugs and prayers to those still fighting, celebrating life as a survivor is important it shows others what is possible giving so much hope. and reminds our selves as survivors of the strength we possess.
Well, we are nearing the end of May and it has been 3 mos of isolation because of the virus-like I said before I am kind of used to hanging out at home but I didn't realize the little I did get out and how it always felt really good even getting out for photos at the lake or ocean. Well, what have you all been doing during this time for fun or make the time go by? we have been doing all kinds of stuff from gardening in our yard playing video games and cooking together spring cleaning and movie watching?
I have been keeping a bullet journal since my chemo ended I do art and adult coloring and together with my husband something I hadn't done for years is doing puzzles we enjoy an hour or 2 after dinner working on a puzzle. we also even though older folk do enjoy Xbox and PlayStation games. well stay safe sending hugs.
Seeing as Facebook is also a place to create memory I want to say how the carnivorous is affecting us right now. we have people staying at home because we are told to. people being fired from jobs and laid off because we are told to stay at home.. it has been hard to get through to young people how important it is not to be in crowds that they could get and pass on the virus to the elderly and others who have bad immune systems. store shelves are empty of sanitizer and toilet paper people started selling it online for way higher prices making a buck off of suffering so American no it is so awful. today the prime minister of England said people must stay at home as well or will get fines and groups will be disbursed by police.
-Famous- who have had it so far Senator Rand Paul, Actor Tom Hanks and his wife, Prince Charles, an NBC sound man for news has died of the disease. it all is so sad these are just a few.
-Vote for Bill-
We have a bill being voted on today (that has been fought over for weeks) first for nursing homes, and for docs, nurses, and for equipment beds, masks, even help for nurses and doctor child care to be paid for. Then the American workers, almost if not of all your entire salary paid for 4 mo, and called furloughed not unemployed meaning you get your job back you also get $600. extra in pay you normally received transparency for over-site of money going to corps. money for local and state governments. small business loans that will help them keep going and keep workers. sounds good so far. the arguments have been about republicans giving money to big corps and friends with no oversite I agree it is for the people not for the rich to have fun with as they want..
-Lies VS Needs-
Sadly today New York still needs tests, masks and so on so either the president is lying about having supplies or he is not allowing it to states he doesn't like, sorry Trumpers in these states or have kids and family in these states. I am not sure NY and other states don't have what they need but they do not so trump lies I guess about having plenty. I must mention president trump hasn't done a great job we as a country soon will pass china on cases of the virus trump could have prevented it one by not disbanding and firing the pandemic group, 2 not calling it a hoax when he called it a hoax made up by dems and letting it spread, consistently lying like saying oh only a few have and it will go away after these few and so and so on. if I or someone I love like or care about dies in the USA I blame the disease but I also will blame him.
-How are We-
anyway we are OK at this point we are staying home and cleaning anything that comes in the house, we enjoy our yard and lucky it is spring, we are doing spring house cleaning and gardening we are playing video games together I love it. we are lucky Jonathan is able to work from home so far no layoffs,
-Deaths-
I have cried for all the deaths in other countries and our own, I read something a friend wrote and it really hit hard and then stories I have heard a lot of and hard on the same topic it is how sad it is people getting the virus how they are taken to the hospital and family isn't allowed to visit it be me or my husband I would be in a full panic you always think will have loved ones with you but many will die with a doctor or nurse they do not know and unable to say goodbye you need to think of this before they go to the hospital say everything you want let them know you will be thinking of them every second that it would be impossible not to feel their presence it will be so much anything to keep them happy and fighting harder and if it has to be they do not die without knowing you and feeling your love. yes when I have read these stories I ball my eyes out for the people going through it and for the thought of me my husband loved ones and friends OMG I love you all I do care you know my heart is huge and it breaks so easy if you know me you know this please take care of your selves please hugs to all I may add more another day I just wanted this and thoughts in my Facebook and in my blog as a memory of what was going on.
Stuck at home, or have to stay away from people becuase of a virus, or maybe have other reasons cash, electric outages and so on. I recently went through chemo and had a very poor immune system so I couldn't really be around people so I thought I would share some ideas to stay busy and not get so bored. I bet after reading you will be on a roll with some of your own ideas this is just some thoughts to get started.
Things you can do inside or really do not forget things outside as well like walks in woods and such and your back yards are ok and fun, be sure to get fresh air if you can.
-Dig out those old board games for family fun
-Make scrapbooks with the family or photo books tell stories from old photos
-Make photo collages on a wall.
-Lookup tutorials or inspirations of things you like doing on youtube Gosh I have spent hours and get nothing done. I file away tutorials and ideas in my youtube favorites examples art, painting, drawing, knitting, sewing, cooking, holiday crafts, DIYs, scrapbooks, photography, photoshop, there are videos about everything
-Take virtual tours of museums and old castles
here is one it is bran castle yup from Dracula story click here to take a video tour and learn about it
-Teach each other to dance what a fun afternoon teaching old and new dances to family members let kids teach you and you teach them or a couple teaches each other then take videos for memories.
-Again get outside bring that laptop or tablet outside to the picnic table or blanket under a tree to do some online reading, searches, watching youtube ideas watching or crafts, if you can do yard work, play yard games, practice photography skills. How about identify birds, lookup bird sounds on youtube. I have a bird blog if you want to check out RI birds, or let's make a bird feeder, collect pine cones and leaves or if near the ocean collect some shells and make projects just look for areas you can walk alone or with family, here is my pine cone crafts ideas and seashell ideas another idea paint or color flat rocks, collect for a garden or if you are family who takes trips people leave them around for others to find, you can look up ideas for rock painting online.. make a fairy garden you can find crafts and ideas on Pinterest and youtube.. check out all these fairy garden ideas big to small use little sticks to make a ladder or campfire use popsicle sticks to make a picnic table you can also make star wars worlds and have adventures.........
DYI candles fun projects with recycling wax, melt down that wax you can't seem to use from the bottom of your jar candles.
-Bake together, or look up recipes online omg so many you could spend half a day on casseroles alone or pasta dishes, or Asian and so on. If you can not make it becuase you do not have items then make a list of favorites you want to try and shopping lists for the future.
More ideas
- Spring cleaning yup even the kids can get involved I mean looking for stuff to do it is like do now what you were going to do in the future months fix up stuff build something in yard fix a fence. get your plant starter seeds going in a room with a warm lamp or sunny window.
-Go for car rides. remember how your parents, well mine and my husbands would go looking at homes well you can do that in your car or watch shows like an escape to the country I believe we have some USA shows like it now or like I said to drive around looking you can also go house hunting online all over the USA we have done that as well. OMG ideas are endless. watch house fixing shows and try your hand at a project.
-Wash your car inside and out
-Give the dog that bath he so needs. play extra with the dog teach him some new tricks
-Clean basement shed or garage or get boxes ready for a yard sale or goodwill.
-Help a sick or elderly neighbor with yard work (just do it do not go to the door and get sick) shovel snow rake leaves take the trash to the road.
-Binge-watch that show you like or find old shows from when you were young.
-Get out the popcorn for those old and new movies, oh it also might be a good time for that free trial of service you might not own.
-Adult coloring today is very popular you can print out pages online you can find printouts for kids as well.
-Write beautiful emails with pics to family and neighbors checking on them and seeing if they are ok check on Facebook and other social media friends elderly could die becuase of lack of care or being checked on.
Have you ever been creative with recycling or have you ever looked on youtube at the everything you can do with videos like toothpicks binder clips pool noodles chopsticks here are some for you to check out. Oooooo how about all those toilet paper rolls? who can come up with a really great contest for toilet paper roll ideas hello night show hosts lol how about crafters come on. here below is a link for t-paper roll crafts.
Jan23 Went for my first port flush since finishing chemo it felt so different being in the same chair I got chemo things seemed so much brighter it was nice seeing the nurses again I will have a few more port flushes before it gets removed I had a choice if I wanted it removed right away or in 3 mo 6 mo or longer I chose 6 mo (which is a popular choice) after my next cancer scans because why take it out when may have to put back in it is surgical and it hurts.. and flushing is like 15 minutes once every 8 weeks. nurses said I looked great.
the port is under my skin and they just use a needle to poke into my skin and into the port it hurts like in the arm a burning sometimes hurts more than others then done they can put stuff in like medicine or draw blood for tests.
my next appointment is for my survivor kit I will write about that when it happens
the next project I am bullet journaling it helps to write moods how I am feeling diet and
more I will share some pages soon I think bullet journaling wold help everyone no matter age or sex. creating it monthly is as fun as writing in it. well again thank you hugs everyone, I am doing well feeling better all the time only issue is breathing and memory which will clear up with time.
OMG this Christmas was the most wonderful I have had in years and yes I have had many great ones with my husband but this Christmas was as wonderful as the magical Christmas mornings when I was A kid so full of happiness unlike being a kid I do not think it was about gifts and Santa that made it so wonderful yet the fact I am in remission really it is such a load off my back it was an unforgettable one. we opened small gifts (you can see some below in video memory for ourselves mostly but also a happy new year wish) anyway we gave some small gifts to one another that we loved, cooked together which was awesome I could also eat without feeling sick and we watched Christmas parades and movies it was just such a wonderful day. What else oh shhhh my hair is coming in white but I think I will keep it we will see it is very common after R chop chemo to have white hair it may not stay white but sometimes it does. I like it.
it is now just the beginning of the new year 2020 resolution I don't know I think just to continue listening and going to the doctors doing what I should to stay healthy and to make sure Jonathan gets healthier and pays more attention to his appointments and doctors.
Last an update on my health well it is the third of January and almost everything is getting better strength and just feeling better like I said earlier apatite is back, the only things still happening are breathing issues and my foggy brain - forgetfulness both may take months to get better. but I am so so grateful to be in remission and feeling better and for all of you who have supported me with good wishes and prayers thank you. I use a pedal bike as I sit on the couch and do arm exercises I also do regular housework vacuuming laundry and so on I hope by spring I will be able to work outside we will see. well, I just want to say thank you so much again Hugs all.
I got a few mugs with covers that I love becuase I am always spilling around my computer like with the dog jumping and moving the table just enough and my big blue buddy also non spill if I reach for it during the night or again if Barnaby knocks it and both if fall on the floor won't break and like not spill we also got thumb piano and felt crafting and lots of kitchen fun gadgets and as always looking for practical and fun. and another coloring book for me as I still love relaxing and coloring thanks hon. it wasn't the gifts it is hard to buy for each other these days fun little things were so awesome this year loved them and just being cancer-free or in remission made it magical I guess becuase it was one of the best I had.
