health update

August 22 and 23 had a bout of vomiting and not feeling well but then feeling a bit better with just some old constipations pain.

25th  been enjoying the cool air outside last few days mainly relaxing watching birds and squirrels and Barnaby l. feeling good today I hope you all have a wonderful afternoon. Hugs all.

29th Tomorrow going to bone marrow biopsy. They say it is painful, but only for a little bit. I'm scared because I'm not at the top of my game to begin with. 
Well, I will be fine, I always finish with good people making me smile, hubby number one and my biggest fan. This is my new "kicking cancer in nodes" t-shirt.

30th bone marrow biopsy -Good morning Barnaby yes Mom has to go out today sorry but extra treats when we get home. Have a good day everyone hugs.

31st Happy birthday to my wonderful husband - all went as expected yesterday yup hurt like a wrenching charlie horse cramping pain in my back.  but pain well it is getting to be normal in a way, special procedures docs and nurses are remembering me now very friendly. Had the same doc that did my port. Doing great this morning sun is shining have a great weekend everyone. And prayers for those in Florida in the path of the hurricane. till next time hugs all. thank you for reading.

chemotherapy R- CHOP DAY

8-15-19 was R-CHOP  day

I didn't sleep well the night before

Well, a long day I slept a lot during part of the treatment because they gave me liquid Benadryl to help with side effects. It made me very sleepy but made time go by faster. Got home around 6 and so far weak but been fine. Jonathan was good company and helpful. Love you hon so much.

8-16  I am doing good today, the nausea meds are working perfectly it seems. Mostly I have low energy like you would after having the flu. I am a bit spacy and foggy, i.e. ”chemo brain”, but we expected that. So far it isn't anywhere near as bad of side effects as I was concerned about. Hoping it continues!

I have been able to do most of my normal daily needs myself with ease, so very grateful.
The picture is of the Neulasta On Pro that is advertised on TV, it's so I don't have to go back for the shot the next day. Cool gadget! I will get blinking green light at about 9 tonight and then it will beep and it will automatically deliver the shot, and that's it, we just take it off.
No more chemo for 3 weeks. Then start again.  

8-17 a bit worse today a bit more times of queazy tummy but no vomiting so happy with that, and was much weaker and dizzy than yesterday but I was able to walk about holding on to things everything else went well.

8-18 wow feeling really good hungry and have energy very happy so far but it is early  I am going to end this post with a quick video if anything gets out of sorts today I will update but I am blessed I know this thank you all for caring so much.

Port put in

Had the port put in and it went pretty well. It actually was faster than the biopsies, which is weird because it is the only actual surgery.

I'm sore and it aches more than the others did.

But I got a fun card to show at airports if it sets off the metal detector. LOL

But, unfortunately, when I got there I found out they want to schedule a bone marrow biopsy. Whhaaatt?!?!

Needless to say I'm upset about that because I've heard it's pretty painful.

But all is well, I'm resting with my hubby and the pup-pup.

day 2- port site still very soar but I am managing hoping pain will go away

interesting video love it

Non Hodgkins Follicular Lymphoma and how I turned it around:)

Biopsy update

Lisa Roy

July 30 at 7:50 AM · 

This morning going in for another biopsy this time in my lower back a larger 2 centimeters they found in PET scan they want to try and get a bigger sample for testing to see what kind of treatment if it is aggressive or not. as always my mental health anxiety has me with upset stomach and edge of tears deep breaths and going to write down some positives before I have to get ready to leave. hugs everyone

This time because the biopsy is of a much deeper lymph node they are using a CT scan to guide it. 

It hurt more than expected mostly giving the pain killer shots 3 shots into sections inside me wow and a longer recovery. Jonathan was with me before and after I am so grateful and he was so awesome keeping me smiling and feeling loved as always. 

8-2-19

Lisa Roy ( today doc appointment for biopsy results) No news the tech with results of my biopsy hadn't sent it to him and wasn't in when he tried to get ahold of her so instead as we wait for results I will get an appointment with his assistant to teach me about what chemo is and so on, by then they will know the kind I will receive and how often. I get my port put in and get an EKG for a baseline and blood work for my blood cell levels I get that a lot now just to see if anything changes nothing has it has been good so far. will post with news hugs everyone thanks you so much for all your support

7-27-19 update

Well, I was off and on sick recently it seems when I have a great day and work gardening a bit or do housework by the end of the day I am wiped out but it is the next day that bothers me. 

I am usually sick like yesterday I had diarrhea tired and out of sorts, it seems I can do things every other day and have to except the other days I will be sick or not feeling well in some way. remember I am on watch and wait with a cancer flare-up which means once it gets bad enough we use treatment to get it into remission. after the biopsi I will start treatment we are finding out if it will be aggressive or not meaning 2 different therapies.

 the biopsy will tell us then I will get a tube shunt or whatever you call it in my chest near my neck for the treatments. 

I have the biopsy in a couple days nervous about it but at least I know what to expect just a different spot this time not my armpit but my lower back I will let you all know how it goes.

I was feeling some depression I wrote about having anxiety and depression to my FL group on facebook they recommended writing good things down think only the positive to get through so I started making these a fun way  to put write my good thoughts down 

I made some awareness items at Zazzle here is one we did for Jonathan people can change the white letters to what they like  the link is here zazzle awareness products 

My husband Jonathan in his hat 

till next time many hugs and thanks 

PET scan results

Pet scan did show some lit up spots mostly in my neck, my armpit had one, and upper chest near neck area and some in my stomach area just above the pelvis. He is going to talk to biopsy specialist to see if any of the clumps/ lymph nodes are big enough the biggest is 3/4 of an inch the rest under a centimeter and a half and smaller he wants a larger enough sample making sure cancer hasn't changed to aggressive. in the meantime for my follicular lymphoma He wants to start treatment because of the fever and fatigue and lack of appetite at times so I will get a shunt put in my chest and start a chemo mixture that actually has few side effects the worse part is sitting through it. for 4 hours each time. so I hear anyway. if he can he will have shunt and biopsy at the same time I think. 

I will admit it all hitting me in the evening crying but not about cancer as much as my strength deteriorating and worrying about Jonathan. I have always been that way things hit me all at once then all is ok again. 

OK good things well we had a bunch of Amazon gift cards from survey sites so used them at amazon prime days for fun Christmas in July yup really Christmas in July we are going to watch Christmas movies and all hehehehe love it,  we ordered a video doorbell and some hats for me and one for Jonathan as well a backpack for laptop and such for Jonathan's work and my long days at the hospital or miny trips a shared deal lol . Jonathan got me a sloth throw blanket and got him a new dash cam for the car.  silicone pot grabber for Jonathan he keeps burning his hands not thinking and his mitt doesn't fit now because of his arthritis. and some other small things it was fun finding that extra money in amazon gift cards we had,

if you want to know the  survey sites we use  to get gift cards they are

 Swag bucks 
inbox dollars 
mobile performance meter 

and for free apps music or movie rentals from play store we use google rewards app.

Merry Christmas in July I celebrate Jesus every day love one another.