little update

 we got the blood work it says no cancer markers haven't heard about the group meeting on the removal of ovarian tumor,

we have decided though since we have a huge uptick in virus right now we will only go out when needed like food pick up.

my knee is giving me a lot of trouble waiting on that as well we do not want to die of covid I hope all is ok with you hugs all.

october- cancer update

 

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Update waiting on blood work to make a decision on surgery they can either

use a robot to remove the left ovary and large growth but if cancerous will need

additional surgery at providence hospital, or could go to providence and have a huge

belly cut do the same but do additional surgery if needed then and their age and

weight make belly cut surgery more dangerous. and longer recovery. Blood work

should help with decisions.

UPDATE PART 2 so we got a phone call this morning from the doctor they are

calling my case special because of my lymphoma so going to put my case in

front of a surgical forum for women and infants at providence hospital, part of

I say WHAT are you serious! how bad is this? really you are scaring me.

another part says ok having multiple opinions from experts and coming to

the conclusion is what you want the best plan right? talk about tears and confusion

all when I just woke up, well feeling better now thought about it I think anyway.

Don’t let it dominate your life, Donald Trump said this about COVID!

Let me tell you any disease that can kill dominates your life without your permission!!!!!!

you do not let it no it just does!!!!! I can say this with my cancer I didn't do anything to get

follicular lymphoma most do not know what causes this blood cancer like Leukemia children

not alive long enough to have done something to cause it, All cancers dominate lives cancer

makes the person sick and need life-saving treatments that are awful and make you sick,

some die the family goes through a lot caring for the person and if they die a lifetime of

sorrow and pain. don't let it dominate Mr trump? What are you saying? again it dominates

we do not let it we have no control. Mr. Trump you just really do not care about people just

your political garbage is all. over 200 thousand deaths because of COVID a virus and still

you do not care Mr trump I pray for our country all the time. we are not in control it is we can

fight and we do fight to get rid of it to get well we do what doctors say unlike you trump we

fight these monsters. you are lucky sir you walked out with all your meds and steroids but

do not brag instead care about all those lives lost to the disease all the families suffering what

it took from them and to those in hospitals fighting to breathe... Mr. Trump.

my results of 6 mo scan

so this week I am going for more tests because in my cat scan they saw something on my ovaries that has moved pretty upset because i suffer anxiety and i do not think any women likes her vajj out for all to see especially older women so upset for many reasons but like aways I am a fighter and will work through this



UPDATE Sept4 --Well went to docs CAT scan was good I have one node still in my lower abdomen it was the aggressive one that was over 2and half CM it is still shrinking smaller than 1cm so good. And rest all still gone and blood work was Good, Next scan in 6 mo, I have a large cyst on my ovary they will probably remove after I meet with another doc. And probably will be soon waiting on a call, asked about port removal he said wants to wait on the ovarian cyst and see what happens with that. So port flush tomorrow. Hugs all , thankful for you all.



________________________________________________________________

this is when i first heard and wrote on facebook

Well, everyone, I have been crying all morning because here we go again. It started with a weird call this morning from gynecology at kent hospital setting an appointment. Huh? Why? Well, something was seen on your ultrasound. Uhhh no, we didn't have an ultrasound but did have a cat scan. Ok, let us call Dr. Joseph's office and find out what is up. So we call oncology (Dr. Joseph) office. They apologize, apparently, the referral got ahead of the call to us. They saw something in CT scan, a mass has moved. What?? so I have a mass on my ovaries that was seen before but it has changed position since then. So they are scheduling all kinds of tests for me starting with vaginal ultrasound. Yuck! And a gynecology exam and pap smear to start, next could be a biopsy and or removal of it or ovaries or more treatments. I am so upset I was really hoping to be one of those many who go years with no issue in remission. And these exams and location upset me so much with some issues I have with anxiety, depression, and PTSD, on top of worries about the stage of it if it is cancerous, and death, crying.

covid tired

Staying at home us not bad but the fear of getting the disease and all that comes with gets long and tiring. 

The good  together time with Jonathan first puzzle ever done together,awww is right haha. I guess I do not write as much these days, excitement is limited it seems. Politics are huge and black lives do matter.

Virus is still out there stacking humans. And people are still argung about having to put masks on when out. We are ok worried but ok. Love you all. 

This is first puzzle we did love it and second is pic of next one we are working on.

National cancer survivor day

It has been 6 months since my last chemo The day after thanksgiving a lot to be thankful for and a wonderful Christmas gift finding out I was in remission, I thank all my friends and family and all the doctors and nurses I love you all. it has been a long 6 months in some ways we have the virus going around this year and isolated at home and I am extra cautious, but I have been doing better a bit grumpy and depressed at times but otherwise pretty good, I am grateful for so much, but mostly for my life mine and everyone around me strength love and hope. God bless all those survivors out there and families and hugs and prayers to those still fighting, celebrating life as a survivor is important it shows others what is possible giving so much hope. and reminds our selves as survivors of the strength we possess.

Update May

Well, we are nearing the end of May and it has been 3 mos of isolation because of the virus-like I said before I am kind of used to hanging out at home but I didn't realize the little I did get out and how it always felt really good even getting out for photos at the lake or ocean. Well, what have you all been doing during this time for fun or make the time go by? we have been doing all kinds of stuff from gardening in our yard playing video games and cooking together spring cleaning and movie watching?

I have been keeping a bullet journal since my chemo ended I do art and adult coloring and together with my husband something I hadn't done for years is doing puzzles we enjoy an hour or 2 after dinner working on a puzzle. we also even though older folk do enjoy Xbox and PlayStation games. well stay safe sending hugs.

The puzzle we are working on 

find more puzzles journals and masks click here 

difficult paw print puzzle
by RenderlyYours</

Serenity Prayer Jigsaw Puzzle
by RenderlyYours

African Safari Puzzle
by RenderlyYours

Fairy night forest Puzzle
by RenderlyYours

moon light fairy Beleive Jigsaw Puzzle
by RenderlyYours

Coronavirus Thoughts

Seeing as Facebook is also a place to create memory I want to say how the carnivorous is affecting us right now. we have people staying at home because we are told to. people being fired from jobs and laid off because we are told to stay at home.. it has been hard to get through to young people how important it is not to be in crowds that they could get and pass on the virus to the elderly and others who have bad immune systems. store shelves are empty of sanitizer and toilet paper people started selling it online for way higher prices making a buck off of suffering so American no it is so awful.  today the prime minister of England said people must stay at home as well or will get fines and groups will be disbursed by police. 

-Famous- who have had it so far Senator Rand Paul, Actor Tom Hanks and his wife, Prince Charles, an NBC sound man for news has died of the disease. it all is so sad these are just a few.

-Vote for Bill-

We have a bill being voted on today (that has been fought over for weeks) first for nursing homes, and for docs, nurses, and for equipment beds, masks, even help for nurses and doctor child care to be paid for.  Then the American workers, almost if not of all your entire salary paid for 4 mo, and called furloughed not unemployed meaning you get your job back you also get $600. extra  in pay you normally received transparency for over-site of money going to corps. money for local and state governments. small business loans that will help them keep going and keep workers.  sounds good so far. the arguments have been about republicans giving money to big corps and friends with no oversite I agree it is for the people not for the rich to have fun with as they want.. 

-Lies VS Needs-

Sadly today New York still needs tests, masks and so on so either the president is lying about having supplies or he is not allowing it to states he doesn't like, sorry Trumpers in these states or have kids and family in these states. I am not sure NY and other states don't have what they need but they do not so trump lies I guess about having plenty. I must mention president trump hasn't done a great job we as a country soon will pass china on cases of the virus trump could have prevented it one by not disbanding and firing the pandemic group, 2 not calling it a hoax when he called it a hoax made up by dems and letting it spread, consistently lying like saying oh only a few have and it will go away after these few and so and so on. if I or someone I love like or care about dies in the USA I blame the disease but I also will blame him. 

-How are We-

anyway we are OK at this point we are staying home and cleaning anything that comes in the house, we enjoy our yard and lucky it is spring, we are doing spring house cleaning and gardening we are playing video games together I love it. we are lucky Jonathan is able to work from home so far no layoffs,

-Deaths-

I have cried for all the deaths in other countries and our own, I read something a friend wrote and it really hit hard and then stories I have heard a lot of and hard on the same topic it is how sad it is people getting the virus how they are taken to the hospital and family isn't allowed to visit it be me or my husband I would be in a full panic you always think will have loved ones with you but many will die with a doctor or nurse they do not know and unable to say goodbye you need to think of this before they go to the hospital say everything you want let them know you will be thinking of them every second that it would be impossible not to feel their presence it will be so much anything to keep them happy and fighting harder and if it has to be they do not die without knowing you and feeling your love. yes when I have read these stories I ball my eyes out for the people going through it and for the thought of me my husband loved ones and friends OMG I love you all I do care you know my heart is huge and it breaks so easy if you know me you know this please take care of your selves please hugs to all  I may add more another day I just wanted this and thoughts in my Facebook and in my blog as a memory of what was going on.